All I Want is a Cure and My Friends Back
There’s a t-shirt in my closet at home, black with white lettering, that bears the words above. It expresses the sentiment that’s in my heart today. It’s World AIDS Day, and a day on which I can’t help thinking about all the people who have been lost; the ones close to me and the people never knew but who meant something to someone.
It was on my mind this morning when I picked my son up and carried him downstairs, and it was on my mind when I kissed him and my husband goodbye and made my way out the door. It wasn’t until I was on the train that it truly hit me. I was sitting, reading and listening to music, and the next song that played was Warren Zevon’s “Keep Me In Your Heart for a While,” written before his own death from lung cancer.
Shadows are falling and I’m running out of breath
Keep me in your heart for a while
If I leave you it doesn’t mean I love you any less
Keep me in your heart for a whileWhen you get up in the morning and you see that crazy sun
Keep me in your heart for a while
There’s a train leaving nightly called when all is said and done
Keep me in your heart for a while
Sitting there on the train I did something I almost never do. I wept. I closed my book, bowed my head, covered my face so that no one would see, and quietly wept. Sentimental, I know. But I couldn’t help it.
Technorati Tags: current events, health, world aids day
I don’t remember a time without AIDS in my life as an out gay man. I came out around the age of 13, just when word of the epidemic was beginning to break. By the time I went to college I was already losing friends to the disease. For a while, I think I was going to funerals and memorials more often than my parents were. I spent much of my time in college doing volunteer work on HIV/AIDS education and prevention, and spent several years after graduation working on HIV/AIDS issues.
Ric was the first person living with AIDS that I met, and he was the first friend I lost to the disease. I’ve written about his death before, and what I learned from him about courage, honesty, and love — both in how he lived with his illness and in how he finally chose to leave this world. There’s now a clinic named after him at AIDGwinnett. I learned so much from the others too. Duane and Marc were a couple, both ill, and though they argued and fought passionately sometimes, they never appeared to stop loving each other, and now I think of that as a kind of lesson about the things that love can weather and still remain. They’re both gone now; one left shortly after the other. Neal and Alex were my fraternity brothers, and from each of them I learned strength and perseverance.
I think about them, and countless others today, and I can’t help asking “Why them, and not me?” I don’t have an answer for that, but today is a day that — as I said above — want them back.
And it’s not just the people I knew. I think of people like Joseph Beam, Marlon Riggs, and Essex Hemphill, whose words and work kept me sane at a time when it was difficult to stay that way, and helped me feel less alone. I think of Nkosi Johnson and Pedro Zamora, both examples of how one person can touch countless others and make a huge impact.
And there are so many others. Given the politics behind the epidemic — manifest today in “abstinence only” policies, etc. — it’s odd that my take on it is so personal, but it’s on a day like today that I feel my own losses to the epidemic most deeply. And I know those losses are multiplied by millions the world over. I know the stats.
People living with HIV and AIDS - 40.3 million
Adults - 38.0 million
Women - 17.5 million
Children under 15 -2.3 millionNew HIV cases in 2005 - 4.9 million
Adults - 4.2 million
Children under 15 - 700,000AIDS deaths in 2005 - 3.1 million
Adults - 2.6 million
Children under 15 - 570,000Total HIV cases to date - 64.3 million
Total AIDS deaths to date - 23.1 million
But the numbers are just numbers to me until I can multiply them by the lives of the people I knew, and the loss I feel in my own heart. When I do, I know the truth is that we all have AIDS.
So, my hope and wish for everyone today is the same as what I felt and wanted this morning on the train; a world without AIDS; a cure and our friends back, and our mothers, fathers, sons, daughter, husbands, wives, neighbors and loved ones — all back. When I imagine it, it reminds me of the last scene in Longtime Companion, when a few of the main characters are walking on a beach and wondering what it will be like on the day there’s a cure. In the next frame, all of the people lost to the epidemic suddenly appear at the end of the beach and run towards them for a fantastic reunion. And then just as quickly, they’re gone and the three characters continue up the beach alone.
I know the reality is going to be something like that. There may come a day when there’s a cure, but there won’t be any reunions; at least not the kind where get to hug and touch and hear the voices and see the faces of the ones who’ve been gone so long. Still, the best way remember them and honor them is to continue working for a cure, and for real prevention.
So, today I remember Ric, Marc, Duane, Neal, Alex and all the others. I’ll probably cry again before the day is over. And I still want them back. I know that can’t happen, so I keep them in my heart and keep working for the day when no one else has to die from this disease and no one has to lose a loved one to it. Ever again.
Ronn, Rashid, Donald, Bernie, Efren, Keith, EJ, Brad, Howard, and Stephen are writing about World AIDS.


December 1st, 2005 at 5:02 pm
Bryce Holcombe was my sister’s first boss in New York, where he ran the Primitive Art department at the Pace Gallery. I believe he died in 1984. At least, there are some African pieces at the Metropolitan Museum of Art with the name of his bequest dated in 1984. I met Bryce while visiting my sister. He was a kind and gentle man, who nurtured Debbie’s passion for art, and mentored her. He died with Debbie holding him in her arms; just the two of them.
I don’t remember the name of my mom’s hairdresser in Sausalito, just across the Golden Gate from San Francisco. He bought my Dad’s Porsche 924. The next time Mom went to get her hair done, he told her he hadn’t known that he was getting two cars for the price of one. When she asked what he meant, he said "It comes with a cop car attached." I don’t remember exactly when he died, but it was before Bryce.
When I got sober in 1987, I met a bunch of folks with AIDS in the rooms. My friend Jeff will never be included in the statistics of AIDS deaths. But I know the reason he hanged himself had to do with the terrible physical discomfort that the conditions his AIDs caused him.
My friend Stewart was one of the founders of the gay AA clubhouse here in Philadelphia. He has been gone a long time, but his legacy lives on. One guy I work with goes to a meeting he started that happens at 11:30 every night. Stewart was a waiter, and wanted to be sure that there was a meeting available for folks getting off work late at night. The meeting still meets that need, and has thrived since he started it.
Having been raised in the SF Bay Area, and lived in Philadelphia, with a large gay population, and my sister in the artistic community in NYC, I have met countless people with AIDs or HIV, and have known a great many well. And I am convinced that, so long as we allow those at most risk to be marginalized, there will never be a cure. That is where the battle lies.
December 1st, 2005 at 6:11 pm
That was a very good piece…Even though I don’t personally know anyone who died from AIDS (at least not openly). One of the moments that drove home the impact of HIV was the movie Philadelphia. It was so touching…I don’t know much about the person it was based on, but the story is very touching. The book “And the Band Played On” also helped me understand more about HIV.
December 1st, 2005 at 6:27 pm
Thanks for the comments. I seem to have gotten considerably more weepy as I’ve gotten older. I crossposted this to my DailyKos diary this evening, and came home to find lots of comments from people also remembering their friends and loved ones.
Yup. I cried again. Fortunately, Parker — who gives great hugs — was nearby and happy to give his weepy old dad a hug.
December 1st, 2005 at 8:34 pm
World AIDS Day: One Goodbye In Ten
If there was a better way to go then it would find me
December 2nd, 2005 at 8:07 am
I do remember a time before AIDS.
I also remember my friends who aren’t here anymore.
And I still grieve for them, as I grieve for us all.
I, too, want a cure and I want my friends back.
December 2nd, 2005 at 1:40 pm
Blogging World AIDS Day
5:25 PM: I’m about to be late to class, but just wanted to throw in links to AIDSWatch and TerranceDC (aka Republic of T’s Terrance).
February 14th, 2006 at 12:57 am
i have lost every friend i have ever adored from this horrible disease. patrick whitman (patrick’s brother is Charles Whitman….u know the Texas sniper) , ron gorman, michael ramirez, john goodson, gilbert gonzales, …..
i try to talk to my family about this…. they are from Arkansas…. they just do not listen to my heart.
i just need help. else, i am going to